Chiltern District Council adopts motor neurone disease charter

Chiltern District Council has agreed to adopt the motor neurone disease (MND) Charter in support of local people living with this terminal disease and their carers.

At a meeting of Cabinet on 9 July 2019, councillors agreed to sign the Charter in order to recognise and respect the rights of people with MND and ensure the Council's policies and procedures enable people with MND to receive a rapid response to their needs and good quality care and support.

Adopting the charter will also help to raise awareness amongst staff and members of the impact of MND.

MND is a fatal, rapidly progressing disease that can leave people locked in a failing body, unable to move, talk and eventually breathe. It kills around a third of people within a year of diagnosis, and more than half within two years. There is no cure.

Unfortunately, MND is still little understood and this contributes to many people with the disease not receiving the care and support they need.

The MND Charter was launched to change this.

Cllr Isobel Darby, Leader of Chiltern District Council, said: "Adopting the MND Charter means that we are committing to doing everything we can as a council to assist people who are living with MND, and their carers and family. This is a devastating disease and it's important we raise awareness of it and support people living with MND to maximise their quality of life."

Chris James, Director of External Affairs for the MND Association said "The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time, as set out in our Charter, can transform lives."


About MND Association The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning. We are a membership organisation and have more than 9,000 people helping to strengthen our voice. 'Champion the Charter on your doorstep' is a MND Association initiative.

What the MND Association does

We improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND. We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society. About motor neurone disease

· MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.

· It attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc.

· It can leave people locked in a failing body, unable to move, talk and eventually breathe.

· It affects people from all communities.

 · Some people may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia.

· It kills a third of people within a year and more than half within two years of diagnosis.

· A person's lifetime risk of developing MND is up to 1 in 300.

· Six people per day are diagnosed with MND in the UK.

· It affects up to 5,000 adults in the UK at any one time.

· It kills six people per day in the UK, this is just under 2,200 per year

· It has no cure

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